Important Update: Temporary Closure of the Nancy S. Klath Center Due to water damage, the Nancy S. Klath Center (101 Poor Farm Road) is temporarily closed for construction. For your safety, please do not visit the building. We will share updates as soon as it is ready to reopen.

Choosing a Home That Cares 

Ted, now 73, was diagnosed with Alzheimer’s two years ago. His wife, Andrea, attends a caregiver support group I lead. 

Recently she told the group, “I know it’s early and my husband is far from needing a nursing home now, but when I read all this stuff about nursing homes being understaffed and giving terrible care, I swear I’ll never put him in one. But then I think of what you in the group have said—that I may reach a point where I simply can’t do it anymore. So then I think I better start looking now, because a good home is going to be almost impossible to find. It all makes me feel so hopeless, I don’t do anything.”

Andrea isn’t alone. The high death rate in nursing homes during the pandemic and their continuing staffing problems have a lot of families feeling more reluctant than ever to trust others with their loved one’s care.

It’s true that understaffing is widespread and makes finding good long term care harder, but it can be found. Here’s how to begin your search. 

Start early! When someone suffers from a dementing illness, a slow decline is likely, allowing enough time to find a good nursing home. But an unforeseen event—a stroke or an accident—can happen and could force you to make a quick decision. 

Think carefully about the kind of care your loved one needs. 

Three levels of long-term residential care are commonly available: skilled nursing, assisted living and memory care. 

Skilled nursing facilities are for people with medical problems who need the attention of registered nurses and certified nursing assistants. Some skilled nursing homes accept patients with dementia. Being medical facilities, they are regulated by federal rules. Inspections, however, fall to the state they’re in, and the thoroughness varies. Because skilled nursing requires a professional staff, it costs more than lower levels of care.

Assisted living homes serve people who need some assistance, for instance with bathing, dressing, medications or meals, but not total care. Many require the person entering to be able to walk and assist in some of their care. You need to carefully check the staff’s ability to give dementia care. 

Generally staffed by licensed practical nurses and certified nurses’ aides and often homier than skilled facilities, assisted living homes are not regulated by the federal government but only through state agencies—like the health department.

Memory Care is most often given in a unit that’s entirely for people with dementia. The care is similar to what residents get in assisted living, enhanced to provide what dementia requires. The label can mean many different things. It can indicate merely that they will accept people with dementia. Or it can mean they offer care in an environment designed specifically to ease the experience of those with cognitive decline and have a staff well-trained in dementia care. Usually, memory care amounts to something in between. 

When you consider placing your loved one anywhere, ask yourself, what do they need help with? What level of care do they need? Are there behaviors that you have learned to work around? You will want the assurance that the staff at a memory unit has been trained to handle that.

Because of the stigma associated with nursing homes, you may feel more comfortable telling people, “My mom’s in assisted living.” But if she needs skilled care—or memory care—she won’t get the kind of attention she needs in ordinary assisted living.

Find out whether a facility you’re considering is for-profit or nonprofit. The difference can have consequences for your loved one’s care.

For-profit homes more frequently make the news for gross negligence, due to putting earnings above adequate care. But there are exceptions. Two of the for-profit, memory-care units near where my support group meets are excellent. Much of their success comes from the fact that they were designed from the start for dementia care—from their physical layout to the training of their staff. 

Nonprofits are often mission driven, not motivated to make money for shareholders. Their mission might be to serve others; some have a religious affiliation. The mission of the excellent nonprofit organization Kendal is “to transform the experience of aging.”

Consider a home’s location and cost as you investigate your choices. Andrea began her search for eventual long term care for Ted right in the support group by asking the other members what determined which home they chose for their family member. Memory care was primary, followed by distance and cost.

Those are good measures to use as you start your search. Try to find a good place within 15 or 20 minutes of your house so it will be convenient to visit. I needed to travel 35 minutes to get to the excellent home I found for my mother, and that meant I visited two or three times a week rather than three or four. (I mention cost below.)

Your local Area Agency on Aging can give you a list of local facilities, as can the local chapter of the Alzheimer’s Association. Your state’s long term care ombudsman—an official advocate for residents in care homes—can at least steer you away from the worst facilities.

Visit residences that seem like good possibilities. Once you have several well-recommended homes that meet your needs regarding location and level of care, call them and speak to the person in charge of admissions, now usually called the director of marketing.

Verify that the facility gives dementia care and ask how their staff is trained to work with that population. To assess what they tell you, check the Alzheimer’s Association’s list of recognized training programs.

Ask about the cost and what is included. A top-notch, for-profit dementia care home is going to be expensive. Excellent care is sometimes given for less in nonprofit homes.

Find out if the rate increases as the resident needs more care.

Make an appointment to visit any homes that sound like good possibilities. Your visit will include a tour and a meeting with the marketing director, when you can ask all the questions you have. Unless you are under pressure to find a place, don’t do more than one in a day. You’ll need time to sort through what you have learned. Be sure to pay a second visit to any that you don’t reject on the first round. You can’t possibly see all that’s important in one visit.

You can find online check lists of what to look for and questions to ask on a nursing home visit, but the very best source is the book The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease and Other Dementias by Nancy L. Mace and Peter V. Rabins. Almost all libraries have a copy.

It has often been called the caregiver’s bible. A reference work, it covers almost everything a dementia caregiver might need to know. The only caveat is that it includes a lot you don’t need to know because there are lots of things that won’t happen to your loved one and you on this journey. It’s best for consulting when you have a question or a problem arises. 

There is no ideal care home. You will need to compromise. Your task is to find the best one available for your loved one.

An important part of your search will be learning what constitutes good dementia care. Once you know that, bad care won’t be hard to spot.

To be continued in my next blog, “At the Heart of Good Care.”

My Father’s Frugal Habits Make Sense Now

This thoughtful blog about a change of heart was originally posted on both Next Avenue and Forbes on May 12. It appears here with the permission of the author.

My father had plenty of habits that irritated my mother. But nothing irritated her more than “Marty being cheap.” As a child, I didn’t understand it either.

For instance, my father turned off the lights in rooms that people had just left. Sometimes we were leaving just to come right back in, but whenever he was home, he would march across the little hallway from wherever he was at either end of the house to click the light switches down. Did he like a dark house?

With the lights off, the forest-green end of the house was as dismal as a real Hansel and Gretel woods. My mother would march right back from wherever she had been to defiantly flick the switches up.

My father also saved things. He wore the same, plaid, flannel shirts year after year, one on top of another, even indoors. In the basement shop, when I was invited, he took long, thick, crooked nails that had been pulled out of boards with the claw end of the hammer and smashed them with the fat, butt end, so they straightened out like new.

He saved rusted nails, which had turned a delicate, copper color I liked. Each size went into its own unmatched, little, glass jar: screws, screw-eyes, all the iron nails: the tenpenny, brads, roofing nails, slender, white, finish nails and even some upholstery nails with stubby shanks hidden by golden, curving, indented tops.

But the frugal habit my mother mocked most was my father’s taking the little, bitty soap ends and mashing them together, so they made a small, irregular cake or many-sided, oily, squashed muffin.

He didn’t explain to me why he was doing any of those things. He didn’t explain anything, except, rarely, American politics. He was a silent man.

Maybe in those days, my mother flattened him. But she was a good mother to me, and you don’t judge your parents when you are still so young it’s difficult to tell them apart. Later, when I was married, they came to visit to say they were a happy couple now. My mother, as it were, apologized. She said gaily, because it was all in the past, “I didn’t let him be the captain of his own ship.” They had a good year before he got sick with ALS.

As an adult, I used to tell friends those amusing, childhood stories about my freaky father—straightening  bent nails, turning lights off, saving soap ends. People recognized he did those things to save money.

In the middle class, where my husband and I had slowly risen to occupy a fairly secure place, saving money had begun to seem odd. It was “cheap,” just as my upwardly mobile mother had said, even before the postwar boom really got started lifting our boat.

My generation’s goal, as we were moving up economic ladders, was to spend on visible objects, showing taste as well as means.

But over time, I noticed that as I told the stories, they had lost the tinge of being amusing foibles. They began to edge toward being about thrift. Conspicuous consumption had seemed cruelly elite during the Great Depression, which marked both my parents, though in opposite ways.

Likewise, after the Great Recession of 2008, waste of any kind began to seem excessive, ostentatious, brutal and stupid. Saving became not a mere trend, but a value and a virtue of those who could manage it. The planet cannot take the rapid, steady diminution of its resources forever.

Plenty of people are replicating some of my dad’s frugal habits. Anyone with any sense now wants to save electricity, because so much of it still comes from fossil fuels. Everyone goes around smoothing down the dimmers.

I’ve come to see differently what I once thought of as my father’s eccentricities. I’ve come closer to him in spirit.

Since he gave me his jars, my own basement shop has held his nail collection and I draw on the legacy.

Just recently, when I mentioned the soap ends, a close friend said with a smile that was only slightly embarrassed, “How do you do that?”

“Oh, it’s quick and easy,” I began. “You get a few slivers wet and soft and slimy, and you crush them and press them and rub them around until they hold together. It feels so nice.”

 

 

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